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What are the education needs of lymphoedema practitioners to be able to adequately support men with/after genito-urinary cancers?

I Grants Graphic

Dr Melanie Thomas, Lymphoedema Network Wales, Dr Rhian Noble-Jones, University of Glasgow
Start date: April 2019
Duration: 24 months 
Funded amount: £28,000


A previous Tenovus Cancer Care funded iGrant (Men’s self-report tool for lymphoedema: LGUCQ 2017-8) identified that, even in today’s modern society, conversations around genital oedema (swelling) after treatment for genital or urinary cancers can be difficult to initiate. Lack of identification of persistent genital swelling after cancer or its treatment can cause lifelong physical, psychological and social problems.

The 2017 study identified barriers to open and honest discussion were common with both the health professional and the patient. Indeed, the men recognised that when the conversation was started by a confident and competent health professional, their own barriers were largely overcome.

This study proposes to scope lymphoedema practitioners from the UK, America, Canada, and Australia who have used the Lymphoedema Genito-Urinary Cancer Questionnaire (LGUCQ) self-report tool, also known as the Lower Limb and Genital Lymphoedema Questionnaire (LLGLQ). By scoping their experiences, specific to the use of the tool and their genital/urinary cancer-related education, we believe we can identify training needs and aspects of good education practice on this subject. At the same time, the research team will explore the contemporary training of other associated health professional, e.g. in the speciality of urology/oncology, for examples of good education resources and training methods (electronic or otherwise).

Based on the findings, and current evidence in academic literature, recommendations for the most appropriate training methods and resources will be made to ultimately improve the patient experience.