Public and Patient Involvement in Research
INVOLVE defines public involvement in research as research being carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them. This includes, for example, working with research funders to prioritise research, offering advice as members of a project steering group, commenting on and developing research materials, undertaking interviews with research participants.
How we involve the public in our research
Tenovus Cancer Care is a member of the Charities Research Involvement Group. This group is a sub group of the Shared Learning Group on Involvement. The aim of the main group is to encourage shared learning about patient and carer involvement between voluntary sector organisations working in the UK.
The focus of the Charities Research Involvement Group is involvement in research.
We currently involve patients and the public in every stage of our iGrant funding process by having our lay Research Advisory Group made up of entirely people affected by cancer.
Our Research Network
We also have our Research Network made up of over 1,500 people affected by cancer who we email on a quarterly basis telling them of any opportunities to engage in research.
This can either be as a research participant (e.g. taking part by completing a questionnaire/ being interviewed) or being actively involved in the research and potentially meet PPI (Patient and public involvement) funding requirements (e.g. identifying research priorities/developing patient information leaflets).
If you would like us to include a call for public participation or involvement in our next mailing, please get in touch with email@example.com to request a template.