Get involved
The All-Wales Cancer Community is our way of making sure that the voices of those affected by cancer are heard by the people who make decisions and shape the cancer care landscape in Wales. On this page you can find current opportunities to get involved!
You can filter the opportunities by cancer type and location (including information about whether they are online or face-to-face), and view in full by clicking on the listings below.
This webpage is in development so if you have any feedback, please let us know of insight@tenovuscancercare.org.uk
If you haven’t already joined the All-Wales Cancer Community and would like to receive opportunities like this right in your inbox, click here to join!
End Date Jul 2024
Squamous Skin Cell Carcinoma AFTER trial
SCC AFTER is a national trial looking at effectiveness of Radiotherapy on non-melanoma skin cancer (cutaneuos squamous cell carcinoma, cSCC) We are looking for patients (and carers) to take part in a Patient Advisory Group to help improve the patient facing documents and how to make these more inclusive and understandable to all patients, and in particular older people which is the group where most instances of cSCC occur.
Cancer Type
Melanoma (Skin)
Location
Online
Eligibility
Skin cancer patients or carers/close relatives of a skin cancer patient
End Date Jul 2024
Take part in research into storytelling interventions for families affected by cancer (Cardiff University)
Could you help to understand how storytelling could promote psychological well-being in cancer patients and their families, by completing up to two online surveys? You do not need to have any prior experience with storytelling or wellbeing interventions to take part.
Cancer Type
All
Location
Online
Eligibility
Any cancer type
End Date Aug 2024
Carers Wales annual ‘State of Caring’ survey
The annual State of Caring survey is the most extensive survey into carers’ experiences across Wales and it is now open to responses until 11/08/2024. This survey is a chance for you to express what life is truly like for unpaid carers in Wales.
Location
Online
Eligibility
Unpaid Carers
End Date Aug 2024
Have your say on the future of palliative and end of life care research - Marie Curie
How can palliative and end of life care be improved? Complete Marie Curie’s survey to shape future research. They need your help to shortlist 79 research questions identified in their first survey with the aim of coming up with a list of the top ten priorities for research into palliative and end of life care.
Cancer Type
All
Location
Online
End Date Sep 2024
Can you help the National Strategic Clinical Network for Cancer by reviewing a survey designed for people affected by cancer
The survey aims to understand the availability of support to help manage the feelings and emotions of patients, family members and carers following a cancer diagnosis. They would like a small group of volunteers (patients, family and carer’s) to review, comment, and test a survey to ensure usability.
Location
Online
Eligibility
Anyone affected by a cancer diagnosis in the last 3 years, including family members and carers
End Date Sep 2024
Carers Wales ‘Me Time’ – online support sessions for carers
Carers Wales are offering a range of online support sessions for unpaid carers, including virtual book clubs, craft groups, finance workshops and more. Sessions run during July 2024 to September 2024
Location
Online
Eligibility
Unpaid Carers
End Date Sep 2024
Cardiff and Vale Unpaid Carers Assembly - 02 October 2024
Voices Adfocad will be hosting the second annual Cardiff and Vale Unpaid Carers Assembly at Sophia Gardens Cricket Ground on October 2nd 2024, including workshops to allow the voices of unpaid carers to come through.
Cancer Type
All
Location
Cardiff
End Date Dec 2024
Join Velindre Cancer Centre in their new Velindre Voices
Velindre Cancer Centre is launching Velindre Voices - a means for existing and past patients and carers, and members of the wider community, to keep in touch with them, influence their work and get involved with them in whatever way suits you.
Cancer Type
All
Location
Cardiff
Eligibility
Anyone affected by cancer
End Date Dec 2024
Join the Largest Study of Melanoma Ever
MyMelanoma is a study designed to research the important current questions about melanoma and its treatment. The questions relate to treatments, the nature of the particular cancers (all cancers are a little bit different), other health matters and to lifestyles. The aim of the study is to collect high quality, detailed information which will be used as a resource by scientists to carry out research to benefit melanoma patients.
Cancer Type
Melanoma (Skin)
Location
Online
Eligibility
Anyone with experience of NHS melanoma treatment
End Date Dec 2024
Do You Know of a Non-medicine Health or Care Technology That Could Improve the Lives of People Living With Cancer in Wales?
Health Technology Wales (HTW) wants to hear about non-medicine health and care technologies that could improve the lives of people living with cancer in Wales. It is inviting health and care professionals, technology developers, academics, and members of the public to submit their ideas, to help HTW appraise these technologies and produce national guidance on whether they should be adopted in Wales.
Cancer Type
All
Location
Online
Eligibility
Anyone
End Date Dec 2024
How can we best support people with cancer to self-advocate?
Cancer Type
All
Location
Online
Eligibility
Anyone who has ever been diagnosed with any type of cancer, or has ever visited their GP with concerns about cancer-like symptoms.
End Date Dec 2025
Help the North Wales Cancer Patient Forum to bring a patient voice to cancer services in North Wales
Join the North Wales Cancer Patient Forum to be given opportunities to use your cancer experience to help make a difference to cancer care in North Wales. By working together with cancer teams across the region, they aim to ensure that the patient voice is heard, especially when designing or refreshing services.
Cancer Type
All
Location
North Wales
Eligibility
Anyone affected by cancer in North Wales
If you or someone you love has been affected by cancer, our free Support Line is there for you. Just call 0808 808 1010