Get involved
The All-Wales Cancer Community is our way of making sure that the voices of those affected by cancer are heard by the people who make decisions and shape the cancer care landscape in Wales. On this page you can find current opportunities to get involved!
You can filter the opportunities by cancer type and location (including information about whether they are online or face-to-face), and view in full by clicking on the listings below.
This webpage is in development so if you have any feedback, please let us know of insight@tenovuscancercare.org.uk
If you haven’t already joined the All-Wales Cancer Community and would like to receive opportunities like this right in your inbox, click here to join!
End Date Jul 2026
How do people make decisions about whether to have surgery for colorectal (bowel) cancer or not?
Researchers want to find the best way to help patients decide if they should have surgery for colorectal cancer. Some patients need to decide whether surgery is the best option for them, because of things like their fitness, age, overall health or other serious health problems – which could make recovery difficult. NHS researchers are looking for ways to support these patients in making informed decisions about whether to go ahead with surgery or to choose not to have it.
Cancer Type
Bowel
Location
Online
Eligibility
Patients, or family members and friends of patients, who have had colorectal cancer and were offered surgery, and who needed to decide whether or not to have surgery because of their age, fitness, and/or other health conditions. We are interested in hearing from people regardless of the decision made, whether they chose to have surgery or not.
End Date Jul 2026
Improving cancer clinical trial information sheets
ECMC Cardiff are looking for patients and caregivers with lived experience of lung, head and neck, bladder, pancreatic, endometrial cancers or cholangiocarcinoma OR early phase trial experience to feedback on a cancer medicine trial patient information sheet.
Location
Online
Eligibility
Patients and caregivers with lived experience of lung, head and neck, bladder, pancreatic, endometrial cancer or cholangiocarcinoma and/or early phase trial experience
End Date Jul 2026
Interview Study Exploring the Psychosocial Experiences and Support Needs of Black and South Asian Women with Metastatic Breast Cancer.
Black and South Asian women aged 18+ in the UK who have been diagnosed with metastatic (secondary) breast cancer are invited to take part in a research study exploring their experiences. Participation involves a demographics questionnaire and a 45–60-minute interview. Participants can choose to take part online (Microsoft Teams), by telephone, or face-to-face (Bristol area only).
Cancer Type
Breast
Location
Face to face and online
Eligibility
Black and South Asian women aged 18+ in the UK who have been diagnosed with metastatic (secondary) breast cancer are invited to take part in a research study exploring their experiences.
End Date Jul 2026
Have you had chemoradiotherapy or radiotherapy treatment for head and neck cancer within the last two years?
Oxford Brookes University need the help of patients and their caregivers (family and friends) to understand what information and support is important immediately after chemoradiotherapy or radiotherapy for head and neck cancer. They want to know from those who are within two years of treatment how a supportive resource should be designed and what would be helpful.
Location
Online
Eligibility
People who have had chemoradiotherapy or radiotherapy for head and neck cancer within the last two years, or who have cared for someone who has
End Date Aug 2026
Physical activity and breast cancer-related lymphoedema: a UK online survey in association with Ulster University
Breast cancer-related lymphoedema can occur as a direct result of breast cancer treatment. To improve care and guidance around physical activity after breast cancer, researchers at Ulster University want to understand the physical activity behaviours, knowledge and preferences of people at risk of, or living with a diagnosis of, lymphoedema after treatment for breast cancer.
Cancer Type
Breast
Location
Online
Eligibility
Anyone who has had treatment for stage I, II or III breast cancer; and has had 1 or more armpit lymph nodes removed; and has completed active treatment (other than hormone treatment) more than 3 months ago
End Date Sept 2026
Take part in an interview about being diagnosed and treated for cancer with researchers from Birkbeck University of London.
Researchers from Birkbeck University of London are looking for volunteers to take part in research into people’s experiences of being diagnosed and treated for cancer. They are particularly interested in hearing from people who live alone or find doctors difficult to talk to. The research will ask about your discussions with your medical team about your cancer and cancer treatment, and whether you sought advice from people outside of your medical team.
Cancer Type
All
Location
Face to face and online
Eligibility
People who have received treatment for any type of cancer.
End Date Oct 2026
Care experiences and support needs for individuals with a mental health condition and a life-limiting illness (CELI)
Swansea University is inviting people living with a long-term or serious physical illness (including cancer) and a mental health condition, or unpaid carers supporting someone in this situation, to take part in a one-to-one interview about their experiences of social care.
Cancer Type
All
Location
Online
End Date Dec 2026
Blood Cancer UK Research Involvement Network
Have you been affected by blood cancer as a patient, carer, family member or friend? Join Blood Cancer UK’s Research Involvement Network and help shape the future of blood cancer research. Members review funding applications, join discussions with researchers and ensure research reflects real-life experience. No scientific background needed. Training and payment provided. Your voice can help improve treatments and outcomes.
Cancer Type
Blood Cancer
Location
Face to face and online
Eligibility
Anyone in Wales affected by any kind of blood cancer (including myeloma, leukaemia, lymphoma).
End Date Jan 2027
Use your experience to help shape and improve cancer care across North Wales.
If you live in North Wales and have personal experience of cancer, or of caring for a cancer patient, and have an interest in improving services and care for others - the North Wales Cancer Patient Forum would like to hear for you!
Location
Online
Eligibility
Anyone living in North Wales who has experience of cancer treatment, or of caring for a cancer patient
End Date Apr 2027
“It’s not fair”: Understanding injustice in children, young people and their parents about their cancer pain.
Cancer-related pain can feel unfair, overwhelming, or hard to understand. Researchers at the Centre for Pain Research, University of Bath want to explore how these feelings affect wellbeing, daily life, and how families support each other when a child or young person is going through cancer. They are particularly interested in understanding the shared, similar and different understandings of cancer-related pain between a child or young person and their parent. Taking part involves completing online questionnaires now and again in 6 months’ time. Your experiences could help shape better support for families facing cancer.
Cancer Type
All
Location
Online
Eligibility
Any child or young person between the ages of 8-24 who have had a cancer diagnosis and their parent (It is important that both are happy to participate in the study because they are interested in the shared experiences of perceived injustice in cancer related pain). The child or young person can be currently receiving or have previously received cancer treatment.
End Date Jul 2027
Join the largest study of melanoma ever
MyMelanoma is a study designed to research the important current questions about melanoma and its treatment. The questions relate to treatments, the nature of the particular cancers (all cancers are a little bit different), other health matters and to lifestyles. The aim of the study is to collect high quality, detailed information which will be used as a resource by scientists to carry out research to benefit melanoma patients.
Cancer Type
Melanoma (Skin)
Location
Online
Eligibility
Anyone with experience of NHS melanoma treatment
End Date Dec 2027
Call for Welsh-speaking volunteers to give feedback on Welsh translations of medical questionnaires for NHS Wales
Iaith mewn Iechyd is a group of volunteer Welsh-speakers who help test Welsh translations of medical questionnaires used across NHS Wales. They are currently looking for Welsh-speaking cancer patients and/or carers to join the group and help test translations of cancer questionnaires by taking part in a short, informal interview with a friendly NHS staff member and providing feedback on the clarity and readability of the Welsh translation.
Cancer Type
All
Location
Face to face and online
Eligibility
Welsh-speaking cancer patients and/or carers from across Wales
If you or someone you love has been affected by cancer, our free Support Line is there for you. Just call 0808 808 1010