Get involved
The All-Wales Cancer Community is our way of making sure that the voices of those affected by cancer are heard by the people who make decisions and shape the cancer care landscape in Wales. On this page you can find current opportunities to get involved!
You can filter the opportunities by cancer type and location (including information about whether they are online or face-to-face), and view in full by clicking on the listings below.
This webpage is in development so if you have any feedback, please let us know of insight@tenovuscancercare.org.uk
If you haven’t already joined the All-Wales Cancer Community and would like to receive opportunities like this right in your inbox, click here to join!
End Date Dec 2023
Share your story with Tenovus Cancer Care
Stories can help to share important messages around symptom awareness and can help people understand that they are not alone in their experiences of cancer. They can help to relieve stigma around issues such as mental health and can add emphasis when an important point needs to be made.
Cancer Type
All
Location
Online
Eligibility
Anyone affected by cancer
End Date Dec 2023
WCVA are working with Macmillan Cancer Care to explore how access to cancer information and support services can be improved for all.
Macmillan have identified that not all persons access information and support services when diagnosed with cancer. We want to know why and how this could be improved. This is your chance to tell your story and help Macmillan change its approach in the future.
Cancer Type
All
Location
Online
Eligibility
Any person diagnosed with cancer or someone who has previously had cancer or someone caring for someone with cancer.
End Date Dec 2023
Marie Curie - Have your say on the future of palliative care research.
Marie Curie is collaborating with the James Lind Alliance on a project which aims to ask people living with serious life limiting illness, their family, friends and health and social care professionals involved in their care, what they think future research should focus on. We are doing this to make sure that future research about palliative and end of life care addresses issues or problems that are important to people with a serious, life-limiting illness, and / or those close to them.
Location
Online
Eligibility
Anyone with an interest in palliative and end of life care
End Date Dec 2023
Cardiff university Inclusive Prehab Project (Funded by the NIHR)
Help us increase access to services that help people get ready for cancer treatment by joining our Public Advisory Group. The team are looking for people that can give advice on how they do the research and reach out to others in their community. You will be paid for your time.
Cancer Type
All
Location
Online
Eligibility
Anyone interested in cancer research
End Date Dec 2023
Use your experience as a patient, carer, or service user to help influence what research takes place and how it is undertaken
Health and Care Research Wales invite you to join their public involvement community. Public involvement is where members of the public share their time and personal experiences to help influence what research takes place and how it is undertaken. There are a range of involvement opportunities to choose from meaning you can give as much or as little time as you wish. You can make a real difference to research in Wales.
Cancer Type
All
Location
Online
Eligibility
Anyone who has experience of being a patient, carer or service user
End Date Dec 2023
If you are a Powys resident living with or supporting someone with cancer this opportunity is for you
The Improving the Cancer Journey in Powys (ICJ Powys) programme is seeking some new recruits to join it’s Journeying Together Forum. Forum members meet up every other month online and help influence decisions that impact people living with cancer, share their stories, give views, and help to coproduce marketing materials.
Cancer Type
All
Location
Online
Eligibility
Anyone with experience of a cancer diagnosis, or supporting someone with a cancer diagnosis, in Powys
End Date Dec 2023
Cardiff University would like to invite you to take part in an interview to help them to understand and improve stop smoking services across the UK.
Researchers across the UK want to hear about your views on stop smoking services - whether you’ve used one, thought about using one, or never considered using one! We want to understand what helps and what doesn’t help in accessing and using stop smoking services.
Cancer Type
All
Location
Online
Eligibility
Smokers or ex-smokers, over 18 years of age
End Date Dec 2023
Help design children and family spaces at the new Velindre Cancer Centre
Help design children's spaces and family rooms at the new Velindre Cancer Centre through a fun and engaging workshop.
Cancer Type
All
Location
Cardiff
Eligibility
Families who have received cancer care/support in Wales, or a young person who wants to make a difference.
End Date Jan 2024
How can Artificial Intelligence aid cancer services in Wales? Find out more and have your say!
How can Artificial Intelligence aid cancer services in Wales? Velindre Cancer Centre and Health Technology Wales are hosting a focus group for you to learn more and have your say!
Cancer Type
All
Location
Face to face and online
Eligibility
Patients, family members or anyone with a keen interest in this area.
End Date Mar 2024
A study looking into the effectiveness of an app to support people with cancer related fatigue
The Untire app has been designed to help people cope with cancer related fatigue. You will be given free access to the app for 12 weeks and researchers at the University of Bath would like to assess how well the app works for you and hear about your experiences using it.
Cancer Type
All
Location
Online
Eligibility
Adult cancer patients and survivors who suffer from cancer related fatigue.
End Date Apr 2024
Sign our petition calling on Welsh Government to commit to implementing targeted lung cancer screening
Lung cancer takes a terrible toll on Wales. Targeted lung cancer screening will help by catching this cancer earlier and giving more people precious time with family and friends . Through signing and sharing this petition, you can aid our calls for this screening in Wales.
Cancer Type
Lung
Location
Online
Eligibility
Anyone
End Date Dec 2024
Join Velindre Cancer Centre in their new Velindre Voices
Velindre Cancer Centre is launching Velindre Voices - a means for existing and past patients and carers, and members of the wider community, to keep in touch with them, influence their work and get involved with them in whatever way suits you.
Cancer Type
All
Location
Cardiff
Eligibility
Anyone affected by cancer
If you or someone you love has been affected by cancer, our free Support Line is there for you. Just call 0808 808 1010