Get involved
The All-Wales Cancer Community is our way of making sure that the voices of those affected by cancer are heard by the people who make decisions and shape the cancer care landscape in Wales. On this page you can find current opportunities to get involved!
You can filter the opportunities by cancer type and location (including information about whether they are online or face-to-face), and view in full by clicking on the listings below.
This webpage is in development so if you have any feedback, please let us know of insight@tenovuscancercare.org.uk
If you haven’t already joined the All-Wales Cancer Community and would like to receive opportunities like this right in your inbox, click here to join!
End Date Jul 2025
Share your thoughts on how to improve bowel testing services in Wales
If you have given a poo sample or had a colonoscopy, the Colorectal Services department at Nottingham University Hospitals NHS Trust would like to hear from you! There has been very little research into the use of FIT in Wales, and they are working on a project to address this. You will be asked your thoughts and ideas on improving bowel services via group video calls.
Location
Online
Eligibility
People in Wales who have given a poo sample or had a colonoscopy, or have cared for someone who has.
End Date Jul 2025
Help design the Urgent Suspected Cancer Pathway
Once it is suspected that a patient may have cancer it is essential that they are diagnosed as quickly as possible so that if it is cancer then they can start treatment. By completing this survey you can tell the Aneurin Bevan Healthboard diagnostic team what would have worked best for you, so that they can ensure that future patients are diagnosed as quickly and easily as possible.
Location
Online
End Date Jul 2025
Cardiff and Vale’s Unpaid Carers Board are seeking feedback from unpaid carers
The Cardiff and Vale Regional Unpaid Carers Board is developing a well-being information pack for unpaid carers. To ensure it meets carers' needs, they are seeking input from carers via a short feedback form. Your responses will help them refine and improve this important resource.
Location
Online
Eligibility
Carers in Wales
End Date Aug 2025
Help shape Tenovus Cancer Care’s response to Welsh Government’s Draft Disabled People’s Rights plan
Welsh Government is consulting on its Draft Disabled People’s Rights plan, which will shape how it supports disabled people over the next decade. We know that many people affected by cancer experience temporary or long-term disability, whether due to treatment or side effects. We invite you to share your views and/or lived experience to help shape our response to the draft plan.
Location
Online
Eligibility
Anyone
End Date Aug 2025
State of Caring Survey 2025
Carers UK are calling for unpaid carers to complete their State of Caring Survey. They want to hear your experiences of being an unpaid carer in 2025. The survey is used as an important source of evidence by Carers UK as well as many other organisations including Government, local authorities, health and social care services, charities and carers groups.
Location
Online
Eligibility
Unpaid carers who are looking after a disabled, older or seriously ill relative or friend
End Date Sept 2025
Together Improving the Cancer Journey / Gyda'n gilydd yn gwella'r Daith Canser
Cardiff and Vale’s Improving the Cancer Journey project is seeking input from anyone affected by cancer. If you or someone close to you has faced a cancer diagnosis, you’re invited to complete a short anonymous survey to help shape better support and services across the region. Mae prosiect Gwella Taith Canser Caerdydd a'r Fro yn ceisio mewnbwn gan unrhyw un sydd wedi'i effeithio gan ganser. Os ydych chi neu rywun agos atoch wedi wynebu diagnosis o ganser, fe'ch gwahoddir i gwblhau arolwg byr, dienw, i helpu i lunio gwell cefnogaeth a gwasanaethau ar draws y rhanbarth.
Location
Online
Eligibility
If you or someone close to you have been diagnosed with cancer in Cardiff and Vale.
End Date Oct 2026
Care experiences and support needs for individuals with a mental health condition and a life-limiting illness (CELI)
Swansea University is inviting people living with a long-term or serious physical illness (including cancer) and a mental health condition, or unpaid carers supporting someone in this situation, to take part in a one-to-one interview about their experiences of social care.
Cancer Type
All
Location
Online
End Date Jan 2027
Use your experience to help shape and improve cancer care across North Wales.
If you live in North Wales and have personal experience of cancer, or of caring for a cancer patient, and have an interest in improving services and care for others - the North Wales Cancer Patient Forum would like to hear for you!
Location
Online
Eligibility
Anyone living in North Wales who has experience of cancer treatment, or of caring for a cancer patient
End Date Jul 2027
Join the largest study of melanoma ever
MyMelanoma is a study designed to research the important current questions about melanoma and its treatment. The questions relate to treatments, the nature of the particular cancers (all cancers are a little bit different), other health matters and to lifestyles. The aim of the study is to collect high quality, detailed information which will be used as a resource by scientists to carry out research to benefit melanoma patients.
Cancer Type
Melanoma (Skin)
Location
Online
Eligibility
Anyone with experience of NHS melanoma treatment
If you or someone you love has been affected by cancer, our free Support Line is there for you. Just call 0808 808 1010