Get involved
The All-Wales Cancer Community is our way of making sure that the voices of those affected by cancer are heard by the people who make decisions and shape the cancer care landscape in Wales. On this page you can find current opportunities to get involved!
You can filter the opportunities by cancer type and location (including information about whether they are online or face-to-face), and view in full by clicking on the listings below.
This webpage is in development so if you have any feedback, please let us know of insight@tenovuscancercare.org.uk
If you haven’t already joined the All-Wales Cancer Community and would like to receive opportunities like this right in your inbox, click here to join!
End Date Jan 2026
Do you have experience of acute myeloid leukaemia (AML)? The National Institute for Health and Care Research (NIHR) would like to hear your thoughts on a clinical trial for a new AML treatment.
The NIHR (National Institute for Health and Care Research) are looking for 6-8 adults with lived or caring experience of acute myeloid leukaemia (AML) or other acute leukaemias, to help shape a new clinical trial. If you take part you’ll be asked to attend an online focus group in January to share your experiences and give your thoughts on a trial for a new AML treatment.
Location
Online
Eligibility
Adults (aged 18 or over) who live in the UK and have lived experience, as a patient or carer, of acute myeloid leukaemia (AML) or other acute leukaemias. Those taking part will need to be able to access and use Zoom to join a focus group and be happy to discuss their lived experience.
End Date Jan 2026
Give feedback on information sheets for a Cardiff University and Velindre NHS Trust PhD project
A PhD project is exploring what information and support lung cancer patients want on physical activity. Researchers want feedback from anyone who is currently receiving treatment for any cancer, on the written information which will be given to participants before they take part in the project.
Location
Online
Eligibility
People currently receiving treatment for a diagnosis of any cancer in Wales
End Date Feb 2026
Share your thoughts on prostate cancer screening
The UK National Screening Committee (UK NSC) want to hear your views around screening for prostate cancer. Members of the public are being asked to read external review documents, as well as the UK NSC’s explanation of screening, and then provide thoughts, opinions, and experiences via an online form.
Location
Online
Eligibility
Everyone
End Date Jul 2026
Have you had chemoradiotherapy or radiotherapy treatment for head and neck cancer within the last two years?
Oxford Brookes University need the help of patients and their caregivers (family and friends) to understand what information and support is important immediately after chemoradiotherapy or radiotherapy for head and neck cancer. They want to know from those who are within two years of treatment how a supportive resource should be designed and what would be helpful.
Location
Online
Eligibility
People who have had chemoradiotherapy or radiotherapy for head and neck cancer within the last two years, or who have cared for someone who has
End Date Oct 2026
Care experiences and support needs for individuals with a mental health condition and a life-limiting illness (CELI)
Swansea University is inviting people living with a long-term or serious physical illness (including cancer) and a mental health condition, or unpaid carers supporting someone in this situation, to take part in a one-to-one interview about their experiences of social care.
Cancer Type
All
Location
Online
End Date Jan 2027
Use your experience to help shape and improve cancer care across North Wales.
If you live in North Wales and have personal experience of cancer, or of caring for a cancer patient, and have an interest in improving services and care for others - the North Wales Cancer Patient Forum would like to hear for you!
Location
Online
Eligibility
Anyone living in North Wales who has experience of cancer treatment, or of caring for a cancer patient
End Date Jul 2027
Join the largest study of melanoma ever
MyMelanoma is a study designed to research the important current questions about melanoma and its treatment. The questions relate to treatments, the nature of the particular cancers (all cancers are a little bit different), other health matters and to lifestyles. The aim of the study is to collect high quality, detailed information which will be used as a resource by scientists to carry out research to benefit melanoma patients.
Cancer Type
Melanoma (Skin)
Location
Online
Eligibility
Anyone with experience of NHS melanoma treatment
End Date Dec 2027
Call for Welsh-speaking volunteers to give feedback on Welsh translations of medical questionnaires for NHS Wales
Iaith mewn Iechyd is a group of volunteer Welsh-speakers who help test Welsh translations of medical questionnaires used across NHS Wales. They are currently looking for Welsh-speaking cancer patients and/or carers to join the group and help test translations of cancer questionnaires by taking part in a short, informal interview with a friendly NHS staff member and providing feedback on the clarity and readability of the Welsh translation.
Cancer Type
All
Location
Face to face and online
Eligibility
Welsh-speaking cancer patients and/or carers from across Wales
If you or someone you love has been affected by cancer, our free Support Line is there for you. Just call 0808 808 1010