Get involved
The All-Wales Cancer Community is our way of making sure that the voices of those affected by cancer are heard by the people who make decisions and shape the cancer care landscape in Wales. On this page you can find current opportunities to get involved!
You can filter the opportunities by cancer type and location (including information about whether they are online or face-to-face), and view in full by clicking on the listings below.
This webpage is in development so if you have any feedback, please let us know of insight@tenovuscancercare.org.uk
If you haven’t already joined the All-Wales Cancer Community and would like to receive opportunities like this right in your inbox, click here to join!
End Date Jul 2026
How do people make decisions about whether to have surgery for colorectal (bowel) cancer or not?
Researchers want to find the best way to help patients decide if they should have surgery for colorectal cancer. Some patients need to decide whether surgery is the best option for them, because of things like their fitness, age, overall health or other serious health problems – which could make recovery difficult. NHS researchers are looking for ways to support these patients in making informed decisions about whether to go ahead with surgery or to choose not to have it.
Cancer Type
Bowel
Location
Online
Eligibility
Patients, or family members and friends of patients, who have had colorectal cancer and were offered surgery, and who needed to decide whether or not to have surgery because of their age, fitness, and/or other health conditions. We are interested in hearing from people regardless of the decision made, whether they chose to have surgery or not.
End Date Jul 2026
Improving cancer clinical trial information sheets
ECMC Cardiff are looking for patients and caregivers with lived experience of lung, head and neck, bladder, pancreatic, endometrial cancers or cholangiocarcinoma OR early phase trial experience to feedback on a cancer medicine trial patient information sheet.
Location
Online
Eligibility
Patients and caregivers with lived experience of lung, head and neck, bladder, pancreatic, endometrial cancer or cholangiocarcinoma and/or early phase trial experience
End Date Jul 2026
Were you diagnosed with colorectal (bowel) cancer three or more years ago, and before the age of 50?
Researchers at Cardiff and Vale University Health Board are looking to speak with people who were diagnosed with colorectal (bowel) cancer before the age of 50, and at least three years ago, to help shape a new study exploring the long-term impact of early-onset bowel cancer on everyday life.
Cancer Type
Bowel
Location
Online
Eligibility
People diagnosed with colorectal (bowel) cancer at least three years ago, and before the age of 50
End Date Jul 2026
Interview Study Exploring the Psychosocial Experiences and Support Needs of Black and South Asian Women with Metastatic Breast Cancer.
Black and South Asian women aged 18+ in the UK who have been diagnosed with metastatic (secondary) breast cancer are invited to take part in a research study exploring their experiences. Participation involves a demographics questionnaire and a 45–60-minute interview. Participants can choose to take part online (Microsoft Teams), by telephone, or face-to-face (Bristol area only).
Cancer Type
Breast
Location
Face to face and online
Eligibility
Black and South Asian women aged 18+ in the UK who have been diagnosed with metastatic (secondary) breast cancer are invited to take part in a research study exploring their experiences.
End Date Jul 2026
Have you had chemoradiotherapy or radiotherapy treatment for head and neck cancer within the last two years?
Oxford Brookes University need the help of patients and their caregivers (family and friends) to understand what information and support is important immediately after chemoradiotherapy or radiotherapy for head and neck cancer. They want to know from those who are within two years of treatment how a supportive resource should be designed and what would be helpful.
Location
Online
Eligibility
People who have had chemoradiotherapy or radiotherapy for head and neck cancer within the last two years, or who have cared for someone who has
End Date Jul 2026
Help update NICE guidance on bladder cancer diagnosis and management
The National Institute for Health and Care Excellence (NICE) is looking for people with lived experience of bladder cancer to join a committee. The committee will look at the evidence that is available and update NICE guidance on bladder cancer: diagnosis and management. The NICE guidance will make recommendations about the best types of treatment, support and services.
Cancer Type
Bladder
Location
Online
Eligibility
NICE is looking for people with lived experience of having treatments for non-muscle-invasive bladder cancer, and an understanding of the issues important to patients and their families or unpaid carers. Please refer to the full list of treatments on the opportunity page.
End Date Jul 2026
Artificial Intelligence (AI) and prostate cancer diagnosis
The National Institute for Health and Care Excellence (NICE) is looking for people with lived experience of having tests for prostate cancer, as well as people with prostate cancer, to be patient experts. Participants will help NICE review whether artificial intelligence (AI) technologies could be used to help analyse digitised images of prostate tissue samples, with the potential to speed up review times and improve accuracy.
Cancer Type
Prostate
Location
Online
Eligibility
People with lived experience of having tests for prostate cancer and people with prostate cancer.
End Date Jul 2026
Help develop guidance on the use of Artificial Intelligence (AI) for breast cancer diagnosis
The National Institute for Health and Care Excellence (NICE) is looking for people with experience of breast cancer diagnosis to help review if artificial intelligence (AI) technologies could help improve the speed, accuracy and consistency of diagnosis (while still requiring review by a pathologist).
Cancer Type
Breast
Location
Online
Eligibility
People with experience of breast cancer diagnosis.
End Date Aug 2026
Physical activity and breast cancer-related lymphoedema: a UK online survey in association with Ulster University
Breast cancer-related lymphoedema can occur as a direct result of breast cancer treatment. To improve care and guidance around physical activity after breast cancer, researchers at Ulster University want to understand the physical activity behaviours, knowledge and preferences of people at risk of, or living with a diagnosis of, lymphoedema after treatment for breast cancer.
Cancer Type
Breast
Location
Online
Eligibility
Anyone who has had treatment for stage I, II or III breast cancer; and has had 1 or more armpit lymph nodes removed; and has completed active treatment (other than hormone treatment) more than 3 months ago
End Date Sept 2026
Share your experiences of being an unpaid cancer caregiver
People who provide informal, unpaid care to loved ones (friends or family) with cancer face unique challenges. Researchers at The University of Manchester want to hear from you about how you have been financially impacted by caregiving. Chat with a friendly researcher about your experiences of being an unpaid carer to someone with cancer or choose to take part in a group discussion/focus group. The aim of this work is to help future unpaid caregivers.
Location
Online
Eligibility
People who are or have been an unpaid carer to people with cancer
End Date Sept 2026
Take part in an interview about being diagnosed and treated for cancer with researchers from Birkbeck University of London.
Researchers from Birkbeck University of London are looking for volunteers to take part in research into people’s experiences of being diagnosed and treated for cancer. They are particularly interested in hearing from people who live alone or find doctors difficult to talk to. The research will ask about your discussions with your medical team about your cancer and cancer treatment, and whether you sought advice from people outside of your medical team.
Cancer Type
All
Location
Face to face and online
Eligibility
People who have received treatment for any type of cancer.
End Date Sept 2026
Moving from children's to teenage and young adult cancer services
Researchers at Cardiff University want to understand what it is like to move from children's to teenage and young adult (TYA) services for cancer treatment. They would like to speak both to young people and to parents/guardians about this experience. They hope the findings will help services better understand what it's like to move to a TYA ward, and to improve the support available at this time.
Cancer Type
All
Location
Online
Eligibility
Young people aged 14+ who have moved to a TYA ward for treatment in the last two years, and/or their parents/guardians
If you or someone you love has been affected by cancer, our free Support Line is there for you. Just call 0808 808 1010