Help Marie Curie identify unanswered questions for palliative & end of life care research
In 2015, a list of priorities for palliative and end of life care research was developed. The full list is here.
It’s been 8 years since those questions were identified. Much has changed; research on the questions identified has been completed and we have all been affected by the COVID 19 pandemic, in different ways.
We feel it is now time to check in again with patients, carers, families and health and social care professionals to see whether the research questions prioritised in 2015 are still unanswered, and whether any new questions should be included. This is a UK wide project and we are very keen to have good representation from the devolved nations, which will help us to identify nation specific priorities.
What will the project do?
This project will involve 2 surveys and a prioritisation workshop. The surveys will ask people living with life limiting or terminal illnesses, their family, friends, health and social care professionals and other people affected by dying, death and bereavement to review previously identified priorities and tell us about any other questions we should include. The prioritisation workshop will identify the most important questions to address in future research.
How can you get involved?
There are a number of different ways that you can get involved, by e.g.
- joining our Lived Experience Group (LEG)
- representing the lived experience group at steering group meetings
- completing the survey
- talking to other people in your community about the project
- attending the final prioritisation workshop
What will it involve?
There will be approximately six meetings of the project Steering Group and the Lived Experience Group over an 18 months, and a prioritisation workshop – you will be offered payment for your involvement. Completion of the survey will be on a voluntary basis.
If you would be interested in being involved in the project, please complete this Expression of Interest Form to tell us a little about yourself or contact Jessica.Bush@mariecurie.org.uk for more information.