Are you interested in helping to improve health and care research? This is your opportunity to help shape the design of a clinical trial for stomach/gastric and/or oesophageal cancer

The National Institute for Health and Care Research is pleased to share an opportunity for members of the public who have lived or caring experience of gastro-oesophageal cancer to be involved in the shaping of a commercial trial.

They are working with a company to help them improve their planned research. Their partner is looking for people who are willing to share their experiences and insights in an online group discussion. This will help them to design a study that is focused on the needs of the patient, their family, and their community.

 

Who is the NIHR looking for?

This opportunity is for 6-8 adults (aged 18 or over) who:

• Live in the UK
• Have lived experience, as a patient or carer, of gastrooesophageal cancer
• Can access and use an online video calling platform such as Zoom
• Are happy to discuss their lived experience in a group
• Are available for the proposed session date: Wednesday 19 November, afternoon or evening
 
What do I have to do?

If you are interested in taking part, please complete the application form linked below. If you are successfully selected for the session, they will invite you and the other public contributors to take part in an online group meeting which will last for 2 ½ hours.

The meeting will be hosted by the NIHR PECD Team, together with the company they are supporting. The session will involve:

• Hearing about the impact your health condition has on your life
• The company talking to you about their planned research
• Sharing your thoughts and feedback on the planned research
 
The NIHR PECD Team will support you throughout the session and will ensure that you have access to any information or guidance you might need to allow you to participate fully.
 
When will the meeting take place and How long will it take?

They would like to hold the meeting on Wednesday 19 November, afternoon or evening.
The activity will last for 2 ½ hours, including a short break.

Will I get paid?

The NIHR, on behalf of the company they are working with, will reimburse you £67.50 for your time.

What happens after the session?

The NIHR PECD team will write an anonymised report for the company, summarising the session’s discussions. The company will use this report to review their plans and make changes to their study based on the group’s feedback.
 
A few months after the activity, the PECD team will send an update from the company to all contributors detailing how the insights were used to improve the study’s design.

How do I apply or find out more information?

If you would like to take part in this opportunity, please complete this application form.
 
If you have any questions about the PECD Service or the planned activity, or have any difficulties completing the application form, please contact the NIHR PECD Service Coordinator by emailing pecd@leeds.ac.uk