What do participants need to do: Share your personal experiences to make the study more relevant and accessible
How long will it take? Varies - The role will involve helping from time to time over a few weeks up to a few months
Will participants get paid? Yes, £25 per hour of your time
Is this for research, policy or services? Research
Who can take part? Anyone who has experience of or has cared for someone with jaw problems after radiotherapy (osteoradionecrosis) or certain medications (osteonecrosis)
Deadline: 28 November 2025
Location: In person/online
Researchers at Swansea Bay University Health Board are looking to develop a new treatment that could help people heal better and avoid painful complications.
The researchers are looking for people with personal experience of receiving treatment for head and neck cancer to help shape the study and make sure it’s acceptable for future patients. Your voice could help improve care for others and influence future research.
You can help if you:
- Have experience of jaw problems after radiotherapy (osteoradionecrosis) or certain medications (osteonecrosis)
- Care for someone with one of these conditions
- Can talk clearly and simply about health topics
- Are happy to read and comment on research documents
- Want to help make the study better for patients
No research experience is needed, just your personal experience and willingness to get involved.
Participants will be asked to; read trial documents, including the study plan and patient information sheet to make sure they are in clear, everyday language; share your personal experience to help make the study more relevant and accessible and; to support the research team as a patient advocate.
You will be covered for travel and additional carer or childcare costs as well as a payment of £25 per hour of your time (you can request less if in receipt of state benefits).
Find out more and sign up here.During sign-up, select ‘other’ when asked ‘How did you find out about this opportunity’, and type in “All-Wales Cancer Community”.
