Get involved
The All-Wales Cancer Community is our way of making sure that the voices of those affected by cancer are heard by the people who make decisions and shape the cancer care landscape in Wales. On this page you can find current opportunities to get involved!
You can filter the opportunities by cancer type and location (including information about whether they are online or face-to-face), and view in full by clicking on the listings below.
This webpage is in development so if you have any feedback, please let us know of insight@tenovuscancercare.org.uk
If you haven’t already joined the All-Wales Cancer Community and would like to receive opportunities like this right in your inbox, click here to join!
End Date Jun 2026
Who is at risk of pancreatic cancer and how can it be spotted earlier?
Pancreatic cancer is often diagnosed late because early symptoms can be vague and difficult to spot. Public Health Wales is developing a research proposal using anonymised health records from people in Wales to better understand who may be at higher risk of pancreatic cancer and how it can be detected earlier. People affected by pancreatic cancer are invited to help shape the research before funding is sought. Your input will help ensure the study focuses on what matters most to patients and families, particularly around early diagnosis, symptoms, and experiences of healthcare use.
Cancer Type
Pancreatic
Location
Online
Eligibility
Individuals with lived experience of pancreatic cancer, including patients, family members, and carers.
End Date Jun 2026
Share your opinion on research with the Wales Cancer Biobank
The Wales Cancer Biobank are looking for patients and members of the public to complete a short 5-10 minute survey about how they can improve patient engagement with cancer research and biobanking.
Cancer Type
All
Location
Online
Eligibility
Anyone
End Date Jun 2026
Share your experience of managing multiple medicines during cancer care
Macmillan Cancer Support and the Royal College of Pharmacy want to hear about your experience of taking and managing medicines during cancer care, especially if you have other health conditions and take several medicines. Your answers will help improve the support, information and care offered to people affected by cancer.
Cancer Type
All
Location
Online
Eligibility
People with any cancer and other long term health conditions who are taking multiple medicines
End Date Jun 2026
Public Health Wales: Research interviews on smoking and health in later life
Public Health Wales is inviting adults aged 55–74 living in Wales who currently smoke or have quit within the last five years to take part in an online interview about smoking, health and wellbeing.
Location
Online
Eligibility
Adults aged 55–74 living in Wales who currently smoke or who have quit smoking within the last five years.
End Date Jun 2026
Exploring factors linked to fear of cancer recurrence
Are you a cancer survivor who has completed treatment? Researchers from Birkbeck, University of London are conducting a study exploring factors associated with fear of cancer recurrence and would really value patient input. This will help them understand what potential protective factors may help reduce this fear by exploring the roles of internal and external strengths and support networks.
Cancer Type
All
Location
Online
Eligibility
Adults (18+) who have completed active cancer treatment and are currently in remission / cancer-free. Please note: end of active treatment can include ongoing endocrine therapy and Herceptin.
End Date Jun 2026
Help us understand what you need to know about changing therapies
Advanced therapies for cancer can be really complicated to understand, so Tenovus Cancer Care are working with the Midlands-Wales Advanced Therapy Treatment Centre to make sure that patients get all the information that they need to be able to feel like they can contribute to the decision-making process.
Cancer Type
All
Location
Online
Eligibility
Anyone who has ever changed cancer therapy during their treatment
End Date Jul 2026
How do people make decisions about whether to have surgery for colorectal (bowel) cancer or not?
Researchers want to find the best way to help patients decide if they should have surgery for colorectal cancer. Some patients need to decide whether surgery is the best option for them, because of things like their fitness, age, overall health or other serious health problems – which could make recovery difficult. NHS researchers are looking for ways to support these patients in making informed decisions about whether to go ahead with surgery or to choose not to have it.
Cancer Type
Bowel
Location
Online
Eligibility
Patients, or family members and friends of patients, who have had colorectal cancer and were offered surgery, and who needed to decide whether or not to have surgery because of their age, fitness, and/or other health conditions. We are interested in hearing from people regardless of the decision made, whether they chose to have surgery or not.
End Date Jul 2026
Interview Study Exploring the Psychosocial Experiences and Support Needs of Black and South Asian Women with Metastatic Breast Cancer.
Black and South Asian women aged 18+ in the UK who have been diagnosed with metastatic (secondary) breast cancer are invited to take part in a research study exploring their experiences. Participation involves a demographics questionnaire and a 45–60-minute interview. Participants can choose to take part online (Microsoft Teams), by telephone, or face-to-face (Bristol area only).
Cancer Type
Breast
Location
Face to face and online
Eligibility
Black and South Asian women aged 18+ in the UK who have been diagnosed with metastatic (secondary) breast cancer are invited to take part in a research study exploring their experiences.
End Date Jul 2026
Have you had chemoradiotherapy or radiotherapy treatment for head and neck cancer within the last two years?
Oxford Brookes University need the help of patients and their caregivers (family and friends) to understand what information and support is important immediately after chemoradiotherapy or radiotherapy for head and neck cancer. They want to know from those who are within two years of treatment how a supportive resource should be designed and what would be helpful.
Location
Online
Eligibility
People who have had chemoradiotherapy or radiotherapy for head and neck cancer within the last two years, or who have cared for someone who has
End Date Aug 2026
Physical activity and breast cancer-related lymphoedema: a UK online survey in association with Ulster University
Breast cancer-related lymphoedema can occur as a direct result of breast cancer treatment. To improve care and guidance around physical activity after breast cancer, researchers at Ulster University want to understand the physical activity behaviours, knowledge and preferences of people at risk of, or living with a diagnosis of, lymphoedema after treatment for breast cancer.
Cancer Type
Breast
Location
Online
Eligibility
Anyone who has had treatment for stage I, II or III breast cancer; and has had 1 or more armpit lymph nodes removed; and has completed active treatment (other than hormone treatment) more than 3 months ago
End Date Sept 2026
Take part in an interview about being diagnosed and treated for cancer with researchers from Birkbeck University of London.
Researchers from Birkbeck University of London are looking for volunteers to take part in research into people’s experiences of being diagnosed and treated for cancer. They are particularly interested in hearing from people who live alone or find doctors difficult to talk to. The research will ask about your discussions with your medical team about your cancer and cancer treatment, and whether you sought advice from people outside of your medical team.
Cancer Type
All
Location
Face to face and online
Eligibility
People who have received treatment for any type of cancer.
End Date Oct 2026
Care experiences and support needs for individuals with a mental health condition and a life-limiting illness (CELI)
Swansea University is inviting people living with a long-term or serious physical illness (including cancer) and a mental health condition, or unpaid carers supporting someone in this situation, to take part in a one-to-one interview about their experiences of social care.
Cancer Type
All
Location
Online
If you or someone you love has been affected by cancer, our free Support Line is there for you. Just call 0808 808 1010