Palliative and End of Life Care Research Priorities Project
Have your say on the future of palliative care research - We're asking people living with a serious life-limiting illness and those who support them how future research can better reflect what's most important to them.
What are the aims of the project?
This project aims to ask people living with serious life limiting illness, their family, friends and health and social care professionals involved in their care, what they think future research should focus on. We are doing this to make sure that future research about palliative and end of life care addresses issues or problems that are important to people with a serious, life-limiting illness, and / or those close to them.
A similar project was published in 2015, which identified a list of the top ten priorities for research in this area. Much has changed since 2015; research on some of the identified priorities has been undertaken and we have all been affected by the Covid-19 pandemic, in different ways. The time is right to repeat the prioritisation process and hear from patients, families and professionals once more to refresh the priorities for palliative and end of life care research, to help generate the biggest possible impact on experiences towards the end of life.
We are pleased to be working again with the James Lind Alliance and many partner organisations.
Who can take part in the survey?
In our survey we would like to hear from:
People who are living with a serious life-limiting illness who may or may not be receiving palliative care or end of life care, people who are caring for a loved one or someone you know who has a serious life-limiting illness, bereaved carers, family members or friends whose loved one(s) died following a serious life limiting illness, volunteers supporting people with serious life-limiting illnesses, members of the public with an interest in palliative and end of life care
Visit https://palliativecarepsp.wordpress.com/survey/ to take the survey