Get involved
The All-Wales Cancer Community is our way of making sure that the voices of those affected by cancer are heard by the people who make decisions and shape the cancer care landscape in Wales. On this page you can find current opportunities to get involved!
You can filter the opportunities by cancer type and location (including information about whether they are online or face-to-face), and view in full by clicking on the listings below.
This webpage is in development so if you have any feedback, please let us know of insight@tenovuscancercare.org.uk
If you haven’t already joined the All-Wales Cancer Community and would like to receive opportunities like this right in your inbox, click here to join!
End Date Sep 2024
Can you help the National Strategic Clinical Network for Cancer by reviewing a survey designed for people affected by cancer
The survey aims to understand the availability of support to help manage the feelings and emotions of patients, family members and carers following a cancer diagnosis. They would like a small group of volunteers (patients, family and carer’s) to review, comment, and test a survey to ensure usability.
Location
Online
Eligibility
Anyone affected by a cancer diagnosis in the last 3 years, including family members and carers
End Date Sep 2024
Help develop a new treatment for ovarian cancer
Current ovarian cancer treatments, like surgery and chemotherapy, often have harsh side effects and don't always prevent the cancer from coming back. A research team with health and Care Research Wales aims to develop a more targeted cancer treatment that will reduce side effects and improve outcomes for patients. Researchers would like to hear about your experiences of ovarian cancer, either from a personal perspective or from caring for a family member or friend. The team would like you to read and review a short document and attend two meetings to do this.
Cancer Type
Ovarian
Location
Online
Eligibility
Anyone with personal experience of ovarian cancer or an awareness of the disease willing to share their experiences
End Date Sep 2024
Carers Wales ‘Me Time’ – online support sessions for carers
Carers Wales are offering a range of online support sessions for unpaid carers, including virtual book clubs, craft groups, finance workshops and more. Sessions run during July 2024 to September 2024
Location
Online
Eligibility
Unpaid Carers
End Date Sep 2024
Cardiff and Vale Unpaid Carers Assembly - 02 October 2024
Voices Adfocad will be hosting the second annual Cardiff and Vale Unpaid Carers Assembly at Sophia Gardens Cricket Ground on October 2nd 2024, including workshops to allow the voices of unpaid carers to come through.
Cancer Type
All
Location
Cardiff
End Date Oct 2024
MOVE and Shine, a free wellbeing event in Cardiff
A free wellbeing day in central Cardiff to help those in their 20s, 30s and 40s following a cancer diagnosis. The day will focus on managing anxiety, getting back into fitness, dealing with fatigue and more. Participants will also have the opportunity to connect with others in a similar situation. It is for those on treatment, in remission or living with or beyond cancer.
Location
Cardiff
Eligibility
Anyone in their 20s, 30s and 40s
End Date Dec 2024
Join Velindre Cancer Centre in their new Velindre Voices
Velindre Cancer Centre is launching Velindre Voices - a means for existing and past patients and carers, and members of the wider community, to keep in touch with them, influence their work and get involved with them in whatever way suits you.
Cancer Type
All
Location
Cardiff
Eligibility
Anyone affected by cancer
End Date Dec 2024
Join the Largest Study of Melanoma Ever
MyMelanoma is a study designed to research the important current questions about melanoma and its treatment. The questions relate to treatments, the nature of the particular cancers (all cancers are a little bit different), other health matters and to lifestyles. The aim of the study is to collect high quality, detailed information which will be used as a resource by scientists to carry out research to benefit melanoma patients.
Cancer Type
Melanoma (Skin)
Location
Online
Eligibility
Anyone with experience of NHS melanoma treatment
End Date Dec 2024
Do You Know of a Non-medicine Health or Care Technology That Could Improve the Lives of People Living With Cancer in Wales?
Health Technology Wales (HTW) wants to hear about non-medicine health and care technologies that could improve the lives of people living with cancer in Wales. It is inviting health and care professionals, technology developers, academics, and members of the public to submit their ideas, to help HTW appraise these technologies and produce national guidance on whether they should be adopted in Wales.
Cancer Type
All
Location
Online
Eligibility
Anyone
End Date Dec 2024
How can we best support people with cancer to self-advocate?
Cancer Type
All
Location
Online
Eligibility
Anyone who has ever been diagnosed with any type of cancer, or has ever visited their GP with concerns about cancer-like symptoms.
End Date Dec 2025
Help the North Wales Cancer Patient Forum to bring a patient voice to cancer services in North Wales
Join the North Wales Cancer Patient Forum to be given opportunities to use your cancer experience to help make a difference to cancer care in North Wales. By working together with cancer teams across the region, they aim to ensure that the patient voice is heard, especially when designing or refreshing services.
Cancer Type
All
Location
North Wales
Eligibility
Anyone affected by cancer in North Wales
If you or someone you love has been affected by cancer, our free Support Line is there for you. Just call 0808 808 1010