Get involved
The All-Wales Cancer Community is our way of making sure that the voices of those affected by cancer are heard by the people who make decisions and shape the cancer care landscape in Wales. On this page you can find current opportunities to get involved!
You can filter the opportunities by cancer type and location (including information about whether they are online or face-to-face), and view in full by clicking on the listings below.
This webpage is in development so if you have any feedback, please let us know of insight@tenovuscancercare.org.uk
If you haven’t already joined the All-Wales Cancer Community and would like to receive opportunities like this right in your inbox, click here to join!
End Date Nov 2025
Are you interested in helping to improve health and care research? This is your opportunity to help shape the design of a clinical trial for Kidney Cancer
The NIHR (National Institute for Health and Care Research) is looking for 4-8 adults with lived or caring experience of Kidney Cancer to help shape a new commercial clinical trial. Participants will be asked to review draft patient-facing documents (like information sheets) to give feedback on their clarity and accessibility. This ensures the study focuses on the needs of patients and their families.
Cancer Type
Kidney
Eligibility
Adults aged 18 or over who have experience, either as a patient or carer, of kidney cancer and can access and use a word processing programme such as Microsoft Word.
End Date Nov 2025
What gets you involved? Help shape how Tenovus Cancer Care campaign for Fairer, Faster Cancer Care
Tenovus Cancer Care are looking to get your feedback on how you like to get campaign information, what inspires you to get involved, and how/if you have previously engaged with campaigns. This doesn’t need to be a political campaign or an election, but might be a campaign by a charity. Your feedback will help shape the campaign information created and how supporters are asked to share information and shout about our campaign, to get maximum impact.
Cancer Type
All
Location
Online
Eligibility
Everyone
End Date Dec 2025
Help shape the Cardiff and Vale University Health Board ten year clinical services plan – Shaping Services for the Future, Together
Cardiff and Vale University Health Board need your voice to help shape its ten year plan to ensure that future services meet the needs of every patient.
Cancer Type
All
Location
Online
Eligibility
Anyone that has accessed a health service in Cardiff and Vale
End Date Dec 2025
Autistic Experiences of Cancer Care
The University of Liverpool are conducting a research study to explore the experiences of cancer care for autistic adults (without a learning disability) in North Wales. They are also inviting relatives/supporters and healthcare professionals who have supported autistic patients through cancer treatment. Insights from interviews will help them identify challenges and recommend ways to improve cancer care for autistic people.
Cancer Type
All
Location
Online
Eligibility
Autistic cancer patients without a learning disability (clinical diagnosis or self identified as autistic), relatives/supporters and health care professionals
End Date Dec 2025
Speak About Your Cervical Cancer Journey to MSc Biomedical Sciences Students at Swansea University
Swansea University is looking for someone who has experienced cervical cancer, either personally or through a close family member, to speak to MSc Biomedical Sciences students as part of a teaching module. The session will focus on their journey from screening through to diagnosis and treatment, providing students with an enriched understanding of the patient perspective in cancer care and research.
Cancer Type
Gynaecological
Location
Face to face and online
Eligibility
Anyone with personal experience of cervical cancer care
End Date Jul 2026
Have you had chemoradiotherapy or radiotherapy treatment for head and neck cancer within the last two years?
Oxford Brookes University need the help of patients and their caregivers (family and friends) to understand what information and support is important immediately after chemoradiotherapy or radiotherapy for head and neck cancer. They want to know from those who are within two years of treatment how a supportive resource should be designed and what would be helpful.
Location
Online
Eligibility
People who have had chemoradiotherapy or radiotherapy for head and neck cancer within the last two years, or who have cared for someone who has
End Date Oct 2026
Care experiences and support needs for individuals with a mental health condition and a life-limiting illness (CELI)
Swansea University is inviting people living with a long-term or serious physical illness (including cancer) and a mental health condition, or unpaid carers supporting someone in this situation, to take part in a one-to-one interview about their experiences of social care.
Cancer Type
All
Location
Online
End Date Jan 2027
Use your experience to help shape and improve cancer care across North Wales.
If you live in North Wales and have personal experience of cancer, or of caring for a cancer patient, and have an interest in improving services and care for others - the North Wales Cancer Patient Forum would like to hear for you!
Location
Online
Eligibility
Anyone living in North Wales who has experience of cancer treatment, or of caring for a cancer patient
End Date Jul 2027
Join the largest study of melanoma ever
MyMelanoma is a study designed to research the important current questions about melanoma and its treatment. The questions relate to treatments, the nature of the particular cancers (all cancers are a little bit different), other health matters and to lifestyles. The aim of the study is to collect high quality, detailed information which will be used as a resource by scientists to carry out research to benefit melanoma patients.
Cancer Type
Melanoma (Skin)
Location
Online
Eligibility
Anyone with experience of NHS melanoma treatment
If you or someone you love has been affected by cancer, our free Support Line is there for you. Just call 0808 808 1010