Get involved
The All-Wales Cancer Community is our way of making sure that the voices of those affected by cancer are heard by the people who make decisions and shape the cancer care landscape in Wales. On this page you can find current opportunities to get involved!
You can filter the opportunities by cancer type and location (including information about whether they are online or face-to-face), and view in full by clicking on the listings below.
This webpage is in development so if you have any feedback, please let us know of insight@tenovuscancercare.org.uk
If you haven’t already joined the All-Wales Cancer Community and would like to receive opportunities like this right in your inbox, click here to join!
End Date Aug 2026
Share your lived experience of breast cancer to help shape potential new research ideas
Moondance Cancer Initiative are looking for people with personal breast cancer experience to attend a meeting in Cardiff on the afternoon of the 10 September. Attendees will work alongside doctors, nurses, and other specialists to help shape potential new research ideas for breast cancer.
Cancer Type
Breast
Eligibility
People who have had breast cancer, were diagnosed and treated in Wales, received their diagnosis within the last 10 years, and have completed their active treatment
End Date Aug 2026
Physical activity and breast cancer-related lymphoedema: a UK online survey in association with Ulster University
Breast cancer-related lymphoedema can occur as a direct result of breast cancer treatment. To improve care and guidance around physical activity after breast cancer, researchers at Ulster University want to understand the physical activity behaviours, knowledge and preferences of people at risk of, or living with a diagnosis of, lymphoedema after treatment for breast cancer.
Cancer Type
Breast
Location
Online
Eligibility
Anyone who has had treatment for stage I, II or III breast cancer; and has had 1 or more armpit lymph nodes removed; and has completed active treatment (other than hormone treatment) more than 3 months ago
End Date Sept 2026
Share your experiences of being an unpaid cancer caregiver
People who provide informal, unpaid care to loved ones (friends or family) with cancer face unique challenges. Researchers at The University of Manchester want to hear from you about how you have been financially impacted by caregiving. Chat with a friendly researcher about your experiences of being an unpaid carer to someone with cancer or choose to take part in a group discussion/focus group. The aim of this work is to help future unpaid caregivers.
Location
Online
Eligibility
People who are or have been an unpaid carer to people with cancer
End Date Sept 2026
Take part in an interview about being diagnosed and treated for cancer with researchers from Birkbeck University of London.
Researchers from Birkbeck University of London are looking for volunteers to take part in research into people’s experiences of being diagnosed and treated for cancer. They are particularly interested in hearing from people who live alone or find doctors difficult to talk to. The research will ask about your discussions with your medical team about your cancer and cancer treatment, and whether you sought advice from people outside of your medical team.
Cancer Type
All
Location
Face to face and online
Eligibility
People who have received treatment for any type of cancer.
End Date Sept 2026
Moving from children's to teenage and young adult cancer services
Researchers at Cardiff University want to understand what it is like to move from children's to teenage and young adult (TYA) services for cancer treatment. They would like to speak both to young people and to parents/guardians about this experience. They hope the findings will help services better understand what it's like to move to a TYA ward, and to improve the support available at this time.
Cancer Type
All
Location
Online
Eligibility
Young people aged 14+ who have moved to a TYA ward for treatment in the last two years, and/or their parents/guardians
End Date Oct 2026
Care experiences and support needs for individuals with a mental health condition and a life-limiting illness (CELI)
Swansea University is inviting people living with a long-term or serious physical illness (including cancer) and a mental health condition, or unpaid carers supporting someone in this situation, to take part in a one-to-one interview about their experiences of social care.
Cancer Type
All
Location
Online
End Date Nov 2026
Autistic Experiences of Cancer Care
The University of Liverpool are conducting a research study to explore the experiences of cancer care for autistic adults (without a learning disability) across all of Wales and England. They are also inviting relatives/supporters who have supported autistic patients through cancer treatment. Insights from interviews will help them identify challenges and recommend ways to improve cancer care for autistic people.
Cancer Type
All
Location
Online
Eligibility
Autistic cancer patients without a learning disability (clinical diagnosis or self identified as autistic) and relatives/supporters
End Date Dec 2026
Blood Cancer UK Research Involvement Network
Have you been affected by blood cancer as a patient, carer, family member or friend? Join Blood Cancer UK’s Research Involvement Network and help shape the future of blood cancer research. Members review funding applications, join discussions with researchers and ensure research reflects real-life experience. No scientific background needed. Training and payment provided. Your voice can help improve treatments and outcomes.
Cancer Type
Blood Cancer
Location
Face to face and online
Eligibility
Anyone in Wales affected by any kind of blood cancer (including myeloma, leukaemia, lymphoma).
End Date Jan 2027
Use your experience to help shape and improve cancer care across North Wales.
If you live in North Wales and have personal experience of cancer, or of caring for a cancer patient, and have an interest in improving services and care for others - the North Wales Cancer Patient Forum would like to hear for you!
Location
Online
Eligibility
Anyone living in North Wales who has experience of cancer treatment, or of caring for a cancer patient
End Date Apr 2027
"It's not fair": Understanding how children, young people and their parents experience feelings of injustice about their cancer pain
Cancer-related pain can feel unfair, overwhelming, or hard to understand. Researchers at the Centre for Pain Research, University of Bath want to explore how these feelings affect wellbeing, daily life, and how families support each other when a child or young person is going through cancer. They are particularly interested in understanding the shared, similar and different understandings of cancer-related pain between a child or young person and their parent. Taking part involves completing online questionnaires now and again in 6 months’ time. Your experiences could help shape better support for families facing cancer.
Cancer Type
All
Location
Online
Eligibility
Any child or young person between the ages of 8-24 who have had a cancer diagnosis and their parent (It is important that both are happy to participate in the study because they are interested in the shared experiences of perceived injustice in cancer related pain). The child or young person can be currently receiving or have previously received cancer treatment.
End Date Jul 2027
Join the largest study of melanoma ever
MyMelanoma is a study designed to research the important current questions about melanoma and its treatment. The questions relate to treatments, the nature of the particular cancers (all cancers are a little bit different), other health matters and to lifestyles. The aim of the study is to collect high quality, detailed information which will be used as a resource by scientists to carry out research to benefit melanoma patients.
Cancer Type
Melanoma (Skin)
Location
Online
Eligibility
Anyone with experience of NHS melanoma treatment
End Date Dec 2027
Call for Welsh-speaking volunteers to give feedback on Welsh translations of medical questionnaires for NHS Wales
Iaith mewn Iechyd is a group of volunteer Welsh-speakers who help test Welsh translations of medical questionnaires used across NHS Wales. They are currently looking for Welsh-speaking cancer patients and/or carers to join the group and help test translations of cancer questionnaires by taking part in a short, informal interview with a friendly NHS staff member and providing feedback on the clarity and readability of the Welsh translation.
Cancer Type
All
Location
Face to face and online
Eligibility
Welsh-speaking cancer patients and/or carers from across Wales
If you or someone you love has been affected by cancer, our free Support Line is there for you. Just call 0808 808 1010