Get involved
The All-Wales Cancer Community is our way of making sure that the voices of those affected by cancer are heard by the people who make decisions and shape the cancer care landscape in Wales. On this page you can find current opportunities to get involved!
You can filter the opportunities by cancer type and location (including information about whether they are online or face-to-face), and view in full by clicking on the listings below.
This webpage is in development so if you have any feedback, please let us know of insight@tenovuscancercare.org.uk
If you haven’t already joined the All-Wales Cancer Community and would like to receive opportunities like this right in your inbox, click here to join!
End Date Oct 2026
Care experiences and support needs for individuals with a mental health condition and a life-limiting illness (CELI)
Swansea University is inviting people living with a long-term or serious physical illness (including cancer) and a mental health condition, or unpaid carers supporting someone in this situation, to take part in a one-to-one interview about their experiences of social care.
Cancer Type
All
Location
Online
End Date Oct 2026
Join an online focus group to discuss radiotherapy treatment for prostate cancer
Health Technology Wales are looking to speak to people with lived experiences of prostate cancer and radiotherapy treatment, including those with experiences with or thoughts on newer approaches to delivering radiotherapy.
Cancer Type
Prostate
Location
Online
Eligibility
People with experience of radiotherapy treatment for prostate cancer in Wales – and/or carers of people with this experience.
End Date Oct 2026
Join the conversation and help shape Wales’ 10-year National Cancer Strategy – events in Llandudno, Swansea and online
Macmillan Cancer Support and the Wales Cancer Alliance are holding events to hear from people who have been affected by cancer. These events will give people with lived experience of cancer a chance to share their views and experiences. Feedback received at the events will help shape the development of the new 10-year National Cancer Strategy for Wales.
Cancer Type
All
Location
Face to face and online
Eligibility
People in Wales with lived or caring experience of any cancer
End Date Oct 2026
Share your experience of radiotherapy for head and neck cancer
Health Technology Wales are looking to speak to people with lived experiences of receiving radiotherapy treatment for head and neck cancer. They would like to hear how head and neck cancer has impacted you, and your views and opinions on an alternative radiotherapy approach aimed at improving outcomes.
Cancer Type
Throat
Location
Online
Eligibility
People with experience of radiotherapy treatment for head and neck cancer in Wales – and/or carers of people with this experience.
End Date Nov 2026
Autistic Experiences of Cancer Care
The University of Liverpool are conducting a research study to explore the experiences of cancer care for autistic adults (without a learning disability) across all of Wales and England. They are also inviting relatives/supporters who have supported autistic patients through cancer treatment. Insights from interviews will help them identify challenges and recommend ways to improve cancer care for autistic people.
Cancer Type
All
Location
Online
Eligibility
Autistic cancer patients without a learning disability (clinical diagnosis or self identified as autistic) and relatives/supporters
End Date Nov 2026
Have you been diagnosed with cancer within the past 6 months? Take part in a study looking to understand the financial impact of cancer
Researchers at Queen’s University Belfast are looking for people who have been diagnosed with any type of cancer within the past 6 months to take part in a study exploring how cancer affects finances, work and wellbeing over time. You do not need to have financial difficulties to take part - they want to hear from people with all types of financial experiences.
Cancer Type
All
Location
Online
Eligibility
Adults aged 18+ who live in the UK and have been diagnosed with any type of cancer within the last 6 months. Participants do not need to have experienced financial difficulties.
End Date Dec 2026
Blood Cancer UK Research Involvement Network
Have you been affected by blood cancer as a patient, carer, family member or friend? Join Blood Cancer UK’s Research Involvement Network and help shape the future of blood cancer research. Members review funding applications, join discussions with researchers and ensure research reflects real-life experience. No scientific background needed. Training and payment provided. Your voice can help improve treatments and outcomes.
Cancer Type
Blood Cancer
Location
Face to face and online
Eligibility
Anyone in Wales affected by any kind of blood cancer (including myeloma, leukaemia, lymphoma).
End Date Jan 2027
Use your experience to help shape and improve cancer care across North Wales.
If you live in North Wales and have personal experience of cancer, or of caring for a cancer patient, and have an interest in improving services and care for others - the North Wales Cancer Patient Forum would like to hear for you!
Location
Online
Eligibility
Anyone living in North Wales who has experience of cancer treatment, or of caring for a cancer patient
End Date Apr 2027
"It's not fair": Understanding how children, young people and their parents experience feelings of injustice about their cancer pain
Cancer-related pain can feel unfair, overwhelming, or hard to understand. Researchers at the Centre for Pain Research, University of Bath want to explore how these feelings affect wellbeing, daily life, and how families support each other when a child or young person is going through cancer. They are particularly interested in understanding the shared, similar and different understandings of cancer-related pain between a child or young person and their parent. Taking part involves completing online questionnaires now and again in 6 months’ time. Your experiences could help shape better support for families facing cancer.
Cancer Type
All
Location
Online
Eligibility
Any child or young person between the ages of 8-24 who have had a cancer diagnosis and their parent (It is important that both are happy to participate in the study because they are interested in the shared experiences of perceived injustice in cancer related pain). The child or young person can be currently receiving or have previously received cancer treatment.
End Date Jul 2027
Join the largest study of melanoma ever
MyMelanoma is a study designed to research the important current questions about melanoma and its treatment. The questions relate to treatments, the nature of the particular cancers (all cancers are a little bit different), other health matters and to lifestyles. The aim of the study is to collect high quality, detailed information which will be used as a resource by scientists to carry out research to benefit melanoma patients.
Cancer Type
Melanoma (Skin)
Location
Online
Eligibility
Anyone with experience of NHS melanoma treatment
End Date Dec 2027
Call for Welsh-speaking volunteers to give feedback on Welsh translations of medical questionnaires for NHS Wales
Iaith mewn Iechyd is a group of volunteer Welsh-speakers who help test Welsh translations of medical questionnaires used across NHS Wales. They are currently looking for Welsh-speaking cancer patients and/or carers to join the group and help test translations of cancer questionnaires by taking part in a short, informal interview with a friendly NHS staff member and providing feedback on the clarity and readability of the Welsh translation.
Cancer Type
All
Location
Face to face and online
Eligibility
Welsh-speaking cancer patients and/or carers from across Wales
End Date Dec 2027
Llais Wales: Share your cancer care experience (NHS and support at home)
Llais Wales is running a short online survey covering the whole journey, from getting help and diagnosis, to treatment, travel and access in a rural area, and support at home (community services and social care).
Cancer Type
All
Location
Online
Eligibility
People aged 16+ who have been affected by cancer in the last 24 months (including patients and unpaid carers/family members/friends).
If you or someone you love has been affected by cancer, our free Support Line is there for you. Just call 0808 808 1010